The Spring edition of the Sussex & Kent ME/CFS Society’s 20 page newsletter includes news on a special meeting to be held in Tunbridge Wells during May and the Sussex and Kent NHS services for people with CFS/ME along with other topical subjects. Senior GP and nutritionist Dr Susie Rockwell has written an interesting article about Blood sugar levels and their effect on your health and wellbeing. Also included is information about a range of approaches that can help patients towards recovery. To secure your copy see the Join Us page of this website.

There is to be a Judicial Review of the NICE Guidelines for CFS/ME during February.
We have always made it clear that although there is certainly room for improvement the guidelines are enabling more patients to receive early diagnosis, symptom control and treatments as they choose. 

The guidelines existence has helped mainstream the illness and guided professionals to treat the illness seriously and health authorities to provide adequate specialist services.

The Sussex ME /CFS Society that looks after many of the 6,000 people affected by the Chronic Fatigue Syndrome – ME across Sussex has produced a new information sheet about the illness for those that think they may have it.

The basic information sheet covers Symptoms and Diagnosis, Cause along with Prevalence, Treatment and Prognosis and avoids using any of the names that have previously been given to the illness as the Society feels that none of them is very satisfactory. The society mostly uses the compromise term ME/CFS that both the Chief Medical Officer’s report did in 2002 and recently the National Institute for Health and Clinical Excellence (NICE) have in their guidelines. “The most important thing is that the illness is fully recognised and those that have it are treated seriously and given the best of treatments available as they choose.” Says chairman Colin Barton.

“We are fortunate in Sussex as most doctors recognise ME as a serious illness and do their best to treat and support their patients. There is also a specialist NHS service for ME operational in Sussex that has dealt with nearly 1,700 referrals since it was set up in 2005. A very good service for youngsters with the illness at Brighton’s Royal Alexandra Hospital led by a specialist paediatrician is also keeping busy.”

Copies of the information sheet written by leading expert Prof Anthony Pinching are available free of charge by contacting 01273 674828.

No need to book - Graded gentle yoga postures - For all ages

A supportive atmosphere encouraging you to work at your own pace

Opportunity to relax and enjoy working with the breath and body in harmony leaving you feeling relaxed and energised

Amanda Zaninetti is a qualified Wheel of Yoga Teacher with over 10 years experience helping ME patients towards recovery. 

Mondays at 2.30 (for 1 hour) - Cornerstone Community Centre, Church Road, Hove, BN3 2FL (corner First Ave/Church Road)

Cost: £5 – you only pay for sessions you attend

Information: 07939830096 or 01273 674828