Sussex ME/CFS Society

About Our Society

The Sussex ME/CFS Society is a fully registered charity, number 1082681, which is affiliated
to the national patient organisation Action for ME.

Our aim is to disseminate information, and give support through newsletters, meetings and telephone contacts. We receive regular support from the local authorities, businesses and trusts.

The organisation is managed by a committee of five members including the charity trustees. The work is shared by the committee and other volunteers including those that run special interest groups.

The group is a member organisation of the Brighton and Hove Federation of Disabled and also subscribes to the Carers Centre, the ME/CFS medical updates, Eastbourne Association of Voluntary Services, Hastings and Rother Disabled Forum, Brighton Community Health Council, Brighton Council for Voluntary Services and The Chronic Fatigue and Immune Dysfunction Syndrome Association of America.

The group has five honorary Patrons these are Dr Des Turner MP, Sir Andrew Bowden MBE, Elizabeth, Countess of Craven, David Lepper MP, Celia Barlow MP and Miss Jenny Seagrove.

Group officers often work with AfME's head office staff and the organisation's Chariman Colin Barton is a member of the Government's Chief Medical Officer's ME/CFS Working Party. Group officers have working relations and easy access to the Group's advisors Professor Anthony Pinching, DR Keith Hine, DR Alan Stewart and DR Kamal Patel. We also have regular contact with DR Charles Shepherd and Dr Anne Macintyre.

The organisation has worked hard in keeping regular contact with members of the medical profession and support agencies in Sussex and has kept ME/CFS in high profile through the local media.

Sussex & Kent ME/CFS Society
PO Box 309,
Brighton BN50 9FR
Phone: 01273 674828
Email: admin.sussexme@btopenworld.com